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Volume 13
Issue 3 |
RCOMO NEWS |
August
2006 |
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Parent Power
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Parent Power
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Parent Power
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END OF SESSION
LEGISLATION UPDATE
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Medicaid Plans Fail in Missouri
By Kit Wagar
Reprinted from “The Star”
Jefferson City— Two proposals to reduce Medicaid fraud died
Friday under pressure from medical providers, who convinced House
leaders that the penalties for stealing from taxpayers were too
severe.
In the process, House Republican leaders also killed a plan that
would have softened last year’s dramatic cuts in Medicaid eligibility
by allowing about 3,200 disabled people back on the Medicaid program.
Democrats, who generally supported both the crackdown on fraud and
the restoration of Medicaid benefits, and Republicans sold out to the
health-care industry.
“We have plenty of legislator health-care providers supplemented by
fat-cat lobbyists who choose to tread lightly on their fellow
providers who have bilked the system because they don’t want to spoil
or soil their alligator slippers,” said Senate Minority Leader Maida
Coleman, a St. Louis Democrat.
But House Speaker Rod Jetton, a Marble Hill Republican, said House
Republicans believed the penalties in the bill would scare off medical
providers who are often in short supply in rural areas. A house
version of the bill was significantly softer on fraud than the Senate
version, he said, but it still increased penalties and contained a
small incentive for whistleblowers to come forward.
Sen. Chris Koster, the Harrisonville Republican who championed the
crackdown, said lawmakers missed a chance to rein in rogue medical
providers who steal up to $600 million a year from a system that
provides medical care for the poor.
“The Senate version of the Medicaid fraud bill was
tough,” Koster said. “It was drafted with law enforcement in mind. It
appears to me the House version of the bill was crafted largely by the
folks in the provider community. Between those two versions it was
hard to find common ground.”
When it became clear that the House was
not going to take up the Senate plan, senators made a last-ditch
effort shortly after midnight Thursday. Koster softened several
provisions and attached his plan to a bill that restored Medicaid
coverage to about one-third of the disabled people who were dropped
from the Medicaid program last year.
The Senate sent the combined bill to the House five times
throughout the day Friday. House leaders refused to accept the
message.
Rep. Carl Bearden, a St. Charles Republican and second-ranking
member of the House, said the House was too busy to consider the
Senate plan. House leaders intended to send their more moderate plan
to the Senate, but didn’t get to it.
The House plan had been written by a special House committee whose
11 members included three doctors and two optometrists. Bearden said
there was nothing unusual about lawmakers who work in a profession
helping craft rules on how that profession is regulated.
House Republicans said the Senate bill could penalize people for
simple billing errors. Low fees paid by Medicaid make such stiff
penalty provisions even more unreasonable, they said.
(The bills were SB1210 and HB1742. For the full text of the bills,
go to www.moga.mo.gov, click on “Joint Bill Tracking” and type in the
bill number.)
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Late Breaking News!
Missouri Governor Open to Session for Medicaid
Program
By Kelly Wiese, Associated Press
Reprinted from AP Newswire—7/13/06
Jefferson City—
Governor Matt Blunt said Thursday that if House and Senate leaders
reach agreement on toughening laws against fraud by health care
providers, he would call them back into session to pass that and to
restore government health care for some disabled workers.
Blunt has said previously he didn’t intend to call a
special session for any issue. But Wednesday, the governor said he
would be willing to call a special session if both issues can be
addressed.
“We’re not going to come back here and spend taxpayer
money until we know we’re ready to pass those two bills,” he said
Thursday.
On the final day of their session, which ended May 12, senators
passed a measure combining restoration of a trimmed-down disabled
workers program with
various measures to punish health care providers who
cheat the Medicaid system. But House leaders refused to take up the
bill for debate.
House Speaker Rod Jetton, attending a news
conference with the governor for a separate bill signing Thursday,
said he asked certain House members to work with the Senate sponsor of
the provider fraud legislation to try to find a compromise. They set
no time frame for reaching agreement.
“We are excited about doing that, happy to come back in September
and knock those two issues out,” he said. “I, like the governor, think
there’s too much fraud going on, and if we can get it stopped we’re
definitely happy to do that.”
But Jetton, R-Marble Hill, said in an interview that he heard
concerns form representatives who also are doctors.
“Can we pass a Medicaid fraud bill to stop fraud, save us money,
but not open up every doctor to a lawsuit from a trial attorney that
could then make them not want to take Medicaid,” he said.
Sen. Chris Koster, R-Harrisonville, who handled the anti-fraud
measure, said his main goal is to preserve elements modeled after the
federal False Claims Act, which would allow the state to keep more of
the money it recovers in fraud cases. The federal government pays
about 60 percent of Medicaid costs, so it usually takes about 60
percent of the money recovered.
The Senate version of the bill allowed people, such as company
employees who suspect wrongdoing, to sue on behalf of the state to
recover money. If the attorney general pursued the case and recovered
money, the whistleblower could receive up to 35
percent of the award. The House version removed the ability for people
to file suit themselves, and if the attorney general acted based on
their tips, whistleblowers could receive up to 10 percent of the
recovered money.
If agreement is reached, a session likely would
happen in mid-September, when lawmakers already must be in Jefferson
City to consider any vetoes by the governor. Blunt hasn’t vetoed any
bills, other than a few spending items within budget legislation.
The Medical Assistance for Workers with Disabilities program
provided Medicaid coverage in its last year to nearly 17,000 disabled
people who earned too much to qualify for traditional Medicaid but who
worked at least a minimal amount each month. It cost about $250
million in state and federal funds.
Republicans argued the program had grown out of control and
eliminated it during their 2005 session. But more than half the
participants continued receiving Medicaid by transferring to another
prong of the program and, in many cases, paying out of their own
pockets.
The bill that ultimately failed this year was projected to cover
1,800 people under the revised program and would have restored or
improved Medicaid coverage to 1,337 sheltered workshop employees. The
state budget included funds to restore the program, and Blunt did not
veto that money. The measure was expected to cost $19.7 million in
state and federal funds this fiscal year.
House Minority leader Jeff Harris, of Columbia, said Democrats
would support a special session for anti-fraud legislation and to
reverse Medicaid cuts made last year.
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Capturing Autism on Video
By Sean Ludwig
Reprinted from “The Southeast Missourian”
David and Taylor Crowe just can’t sit still. Whenever the father and son have a spare moment, they are always
doing something productive.
David, an orthodontist who lives in Cape Girardeau, and Taylor, his
autistic son, are currently involved with projects aimed to educate
people about autism.
Not only are they working on bringing to life The Tailor Institute, a not-for-profit organization dedicated to autism
research, but they are also putting the finishing touches on a new DVD
that will help people understand autism.
Autism is a spectrum disorder. It can range from the
low-functioning, which can include mental retardation, all the way to
genius-level intellect with social difficulties consistent with
autism, according to David.
The Tailor Institute, which received a $200,000 grant
from the Missouri Department of Economic Development, is attempting to
advance the systems of care and services for high-functioning
autistics. The organization has conducted interviews with parents,
physicians, therapists and educators. They are currently developing
educational materials and will begin conducting more research in the
fall.
In 2000, the Crowes finished “Growing Up With Autism,” a
20-minute VHS tape that shows Taylor’s development growing up and ways
to cope with the disorder. The DVD is a new, extended version of
“Growing Up With Autism” and it runs about an hour with bonus
materials.
The old video showed Taylor up to age 19. The new version
incorporates how the 25-year-old lives with his disorder as he attends
the California Institute of the Arts in Valencia, Calif.
“The target audience is educators, families, parents, siblings and
people that either are new to the diagnosis of autism or want to learn
more about it,” David said.
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Taylor said that the video was important because
autistic people can misinterpret things like teasing and joking.
“Some of the teachers I had as a kid would say
stuff to me that made me think they wanted to kidnap me,” Taylor said.
“One said if I didn’t get my work done, I’d never go home. They were
teasing. I didn’t know that.”
Taylor said for this and several other reasons, educators need to
educated on autism.
He also said all autistic people should have a
“circle of friends” - which encourages them to have a variety of
friends, all of whom are familiar with autism.
“Autistic people need friends, too,” Taylor said.
“I have a friend with Asperger syndrome who says I’m his chief number
one friend. The reason is because he never had a circle of friends.”
The first version was produced by Showcase
Productions (now Showcase Technologies) and began being distributed in
2003 by the Council for Exceptional
Children’s Division on Developmental Disabilities.
More than 3,000 copies of the video have been sold.
Tom Emmendorfer, who works at Showcase
Technologies, is the producer and editor of the DVD project and has
spent more than 100 hours shooting footage, editing and
conceptualizing ideas. Emmendorfer said they aim to have the project
finished by early September.
“I see the potential Taylor has to offer the
world,” Emmendorfer said. “I see the gift he has and it’s neat to be a
part of that.”
Taylor, who is high functioning, is studying
animation at CalArts and intends to graduate in May 2007. He aspires
to work at Dreamworks Animation.
When Taylor isn’t studying or painting, he gives
speeches at autism conferences. His next speech is at the 2006 Texas
State Conference on Autism in September.
“I don’t enjoy rehearsing and all,” Taylor said.
“But I know it’s something I have to do to help other people with
autism.”
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ARC of Washington, DC Report,
“Review of State ICF-MR Leave Policies”
Reprinted from "Monday
Morning in Washington DC" (The Arc of the United States and the
National Down Syndrome Society, 2006)
Over 100,000 people with developmental disabilities
across the U.S. live in Medicaid funded Intermediate Care Facilities
for persons with Mental Retardation (ICFs-MR). ICF-MR residents can
benefit significantly from opportunities to take periodic overnight
absences to spend time in the community with family and friends. Each
state sets its own policy to determine how often its Medicaid program
will pay ICFs-MR to hold a bed when a resident is absent. Because
ICFs-MR are not required to hold beds without payment, state leave
policies control ICF-MR residents’ ability to take overnight leave.
The Arc of DC reviewed state ICF-MR leave policies
in response to requests for help by parents of adult DC residents with
developmental disabilities who were concerned about the limits of DC’s
current policy. While DC only allows up to 18 absences per year for
either home visits or hospital stays, most states either place no
annual limits on home visits, or allow an average of up to 44
“therapeutic leave” days per year. Twenty-nine states provide hospital leave and typically reimburse for up to 14 days in
a row when an ICF-MR resident is hospitalized, with no annual limits.
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Editor’s Note: The complete report can be found on
the ARC of DC site http://www.arcdc.net/State%20ICF-MR%20Leave%20Policies.htm.
In this report, Missouri ranked 37th out of the 50 states and District
of Columbia for therapeutic leave policy.
Below is a reprint of Missouri’s Medicaid State
Plan, Attachment 4.19-C, “Payment for Reserve Beds,” on the U.S.
Department of Health and Human Services, Centers for Medicare and
Medicaid Service web site:
Reserve Bed Days –The State provides for
coverage of a maximum of twelve reserve bed days for the first six
calendar months and 12 days for the second six calendar months of the
year for recipient residents of Title XIX nursing facilities for the
purpose of therapeutic home visits. The absence must be specifically
provided for in the patient’s plan of care and physician prescribed.
The state provides for coverage of reserve bed days
for days that a recipient resident of a Title XIX nursing facility is
in a hospital if certain criteria are met. The maximum number of days
that are covered in one hospitalization period is three days. |
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2006 Mentally Retarded Citizens of Missouri
Annual Meeting
Friday and Saturday,
September 29 and 30, 2006
At
Best Western Colonial Inn
Perryville, MO—I55 & Highway 51, Exit 129
Agenda for Saturday, 9/30/06
Registration: 9:00 a.m.
Morning session: 9:30 a.m.
Lunch Break: 11:30 a.m.-1:00 p.m. (On Your Own)
Afternoon Session: 1:00-4:00 p.m.
Banquet at 6:00 p.m.
There will be a $20 registration fee, which will
include the cost of the Saturday night banquet.
There will be a $25.00 registration fee for sons and daughters
of the attendees which will include the cost of the Saturday night
banquet and a recreation package, if they wish to participate.
Speakers will include:
Gail Willis-McCray, Legislative Consultant for MRC
Betty Coll, Vice-President, MRC, representing Bellefontaine Hab Center
Fulvio Franzi, Director, Extended Employment Sheltered Workshops
A block of rooms has been reserved at the
Best Western Colonial Inn from 9/29/06 through 10/01/06.
1-888-737-5612
Rooms are $47.00 per night, non-smoking and up to 4
persons per room.
The room rate includes a continental breakfast.
These rooms will be held until 9/20/06.
Deposit for rooms may be made by credit or debit cards
when making reservations or checking in.
To cancel a reservation, guests must call by 6 p.m. on the
day of arrival to avoid charges on their credit card.
Recreation will be provided for your sons and daughters
at the Perry Parks Center in Perryville.
Registration Form for MRC Annual Meeting—September 30,
2006
Name ___________________________________________________
Address _________________________________________________
City _________________________ State ______ Zip ___________
Number of persons attending Meeting _______ @ $20/person
Number of persons attending Recreation __________ @ $25/person
Total amount enclosed _____________________
Please make checks payable to MRC of Missouri.
Please send registration and checks by 9/20/06 to:
MRC of Missouri
P.O. Box 831
Cape Girardeau, MO 63702-0831
You may also register at the door. 1-800-417-8275
Saturday, September 30, 2006—Recreation

The Perry Park Center
The Perry
Park Center houses the Perryville branch of the Riverside Regional
Library; two full basketball courts equipped for basketball, tennis, and
volleyball, along with two sets of bleachers that hold 1800 people. Also
found in the Perry Park Center is a 417-seat theater with stadium seating
which is equipped for concerts, movies, plays, and other theatrical
events. The Aquatics Center has a 25-yard 6 lane lap pool, wading pool,
diving well, baby pool, a 109-foot long 17 foot-high water slide, and two
diving boards. A complete weight room and a Kids Club for children to play
at while their parents are using the center are also found at the Perry
Park Center. The Perry Park Center is continuously offering new programs
and special events.
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Medicaid Exception Request Forms Available
If you are a Medicaid
recipient and have lost a service that is medically necessary, you can
apply for a Medicaid Exception. The Medicaid Exception Request form
along with a Certificate of Medical necessity requires a physician’s
statement of medical need. The physician must indicate if the request
is an emergency or non-emergency. Mail forms to Exceptions Unit,
Division of Medical Services, PO Box 6500, Jefferson City, MO
65102-6500. The Exceptions Unit obtains a decision from the
appropriate medical or pharmaceutical consultant &/or administrative
official and informs the treating prescriber, provider of service and
recipient of all approved decisions. In the event of a denial, only
the prescriber and recipient are notified.
Forms are available on the MRC
website: www.rcomo.org
(Click on What’s New.)
or by calling our toll free number - 1-800-417-8275
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DMH and Abuse and Neglect
An Editorial
The St. Louis Post-Dispatch ran a series of
articles last month that unearthed some astonishing figures in terms
of the frequency of abuse in Department of Mental Health-run
facilities for the handicapped. There have been 21 deaths, 323 cases
of injuries and 2,287 confirmed cases of abuse and neglect since the
year 2000. And these are only the cases that have been reported. Who
knows how many more cases were ignored.
The Dispatch reported that the state’s
database is fraught with coding errors, making it impossible to
determine how many suspicious deaths or injuries were not
investigated. (It was found that in the state database there were 24
uninvestigated deaths since 2002.) Investigations that were
held were repeatedly criticized by federal inspectors as inadequate.
Of the 21 deaths that were investigated, only one case resulted
in prosecution and conviction.
Law enforcement was not notified of many of the
incidents, which broke a law passed in 1980 that required the DMH to
notify police of allegations of sexual abuse and assaults causing
injuries. In fact, from 2002 to last year, federal inspectors cited
the DMH’s habilitation centers fifty-nine times for failing to report
suspicious incidents or investigate them properly. And when the DMH
does notify police of allegations of serious abuse, police
commonly do not document complaints and do not write incident reports.
Even when they do write reports, they do not investigate. When they do
investigate, they defer to DMH findings.
The DMH, although they promised to do this, has
failed to notify advocate groups of any of the deaths. And it is
impossible to determine what happened in any of the investigated cases
because of a number of secrecy laws. Missouri state law bars the
public from seeing any reports concerning abuse and neglect of any
handicapped person.
There are countless delays in investigation.
Department policy requires investigation to be finished in 30 working
days. However, only one-third of the investigations are done within
that time frame. Preliminary reports are required within the 30-day
limit. That wasn’t done in one-sixth of the cases.
The federal government wants answers. Missouri’s
response has always been, “We promise to do better.” But a year or two
later, many state-run habilitation centers
would be cited for the same problems and repeat the
same promise. And those are state-run facilities. The federal
government does not inspect privately-owned group homes. That’s left
to the DMH.
Most deaths tied to abuse and neglect occur in
private facilities – 14 out of the 21 reported deaths. Caseworkers,
the eyes and ears of DMH, often fail to meet with clients once a
month, as required. The average caseload is 41 to 75 depending on the
region. State auditors have repeatedly found times when private
facilities did not report suspicious incidents and the state did not
investigate reports that were submitted. When investigations are done,
the state takes twice as long to finish them in private homes as it
does at its own institutions.
Even if a caseworker stops by once a month, no one
from the state is around the rest of the time. The state auditor’s
office found numerous examples of incidents not being entered into the
state’s incident tracking system either by private facilities not
submitting them or by regional staff not entering them into the
computer. While many facilities are well-run, it’s easy for bad
facilities to hide abuse or neglect. Because of this, the state has
failed to revoke licenses of facilities where workers have committed
deadly lapses and has failed to ensure that workers guilty of
mistreatment don’t get jobs at other places.
The bottom line is that the state cannot or will
not shut down facilities with bad abuse records. DMH says that they
punish in other ways such as forcing them to adopt plans to correct
behavior. The truth of the matter is that the DMH is not holding
itself or any of the private facilities accountable.
It is a sad statement that families are lobbying to
keep state-run facilities like Bellefontaine, which doesn’t exactly
have a clean record when it comes to abuse and neglect, open because
they say it would be more dangerous for their loved ones in private
facilities.
The DMH is out of control. The leadership continues to change and
neither vendors nor customers know how to deal with it.
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Attention, vendors!
The Legislature approved a 7% increase in the
rates to private facilities!
Contact your Regional Center before September 1,
2006 for details.
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INFORMATION HOT LINE—1-800-417-8275
If you know of a situation needing our attention, please
do not hesitate to call.
Your call can remain confidential.
Mentally Retarded Citizens of Missouri
1310 Southern
Expressway PO Box 831
Cape Girardeau, MO 63702-0831
(800) 417-8275
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Authorization is granted for reprints of this document in part, or its
entirety.
Mentally Retarded Citizens of Missouri -
www.rcomo.org - E-Mail:
info@rcomo.org
- Phone: (800) 417-8275
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